News

Miss Rebekah has had a busy week! After her cardiology appointment on Tuesday, Rebekah saw her pediatrician on Wednesday. We discussed a variety of information.....feeding, development, Synagis shots and congestion.

Rebekah will be getting her Synagis shots every month at her pediatrician's office during RSV season. This series of shots is for protection against RSV, which is a cold virus that can cause severe complications in infants. The complications can be fatal in babies whose immune system, heart or lungs are already compromised. We are very thankful that Rebekah qualified for the shots and that she is able to get them at her pediatrician's office!

As for feeding, we are marching onward! Rebekah has been given the green light to begin solid foods. We are beginning with a teaspoon of rice cereal and will be working up to a tablespoon of cereal twice a day. We want to start slowly to make sure Rebekah's system will handle the addition of cereal. If Rebekah does well with the cereal, we will begin working in other foods in a couple of weeks. So far, the cereal has been going down well. We are continuing the nighttime feedings as well to help with Rebekah's calorie intake.

As far as development, Rebekah is moving right along! She is smiling, babbling, cooing and interacting with us, especially with her brothers. Rebekah is grasping toys, transferring toys between hands and bringing toys to her mouth. We are still working a lot on the physical development - rolling over, sitting up and holding her head stable consistently. We are thankful for our therapists and their work with Rebekah!

Rebekah is still struggling with some respiratory congestion. We suspect that Rebekah is teething, but the congestion is a problem either way. The congestion is not bad and does not seem to affect her breathing much, so we are just watching it for now. Hopefully it will clear up on its own without any intervention.

We also saw the pediatric surgery group here in Greenville this week so they could take a look at Rebekah's g-tube. We have had problems with the mic-key button that Rebekah has deflating every two to three weeks (it should be lasting 3 to 4 months), so we wanted a second opinion. The surgeon has ordered a new g-tube and it should be in sometime early next week. When it comes in, they will replace Rebekah's current tube with a slightly different one. The surgeon also ordered a different size tube than the one Rebekah currently has, so we are hopeful that it will be a better fit.

That's all the latest news for now. Rebekah has a week off with no scheduled appointments other than the g-tube replacement when it arrives. We are hoping for another good week and some more weight gain!!

Nancy