My grace is sufficient for thee: for my strength is made perfect in weakness.  Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me.       2 Corinthians 12:9

Friday, October 29, 2010

Bumped

Well, we knew it could happen, but never really thought it would at this late stage in the game. I answered the phone this morning, and it was Dr. Bradley, Rebekah's surgeon. He explained that a critical case has come in and needs to be scheduled ahead of Rebekah. So, Rebekah's surgery will NOT take place on Wednesday. She has been put on the schedule for Friday, November 5, as the first case. We will need to be at the hospital by 6:00 in the morning for her surgery to start around 7:30 or 8:00.

This means that we will not be leaving Greenville until Wednesday. Rebekah's pre-op will be on Thursday and from there we go on as planned. Let's hope this is the only bump we get! :)

In other news, we picked up Rebekah's stroller on Wednesday this week!! It looks great, and we all love it. Rebekah sits up higher in it, and she can see so much more. It also has a headrest, armrests, footrests and all kinds of padding on it. It's like a little throne for the little princess! :) I have taken some pictures of Rebekah in it, but my camera battery has to charge before I can download them. Hopefully I will get some pictures posted this weekend.

Thank you for all of your prayers. We appreciate each of you!

Nancy

Saturday, October 23, 2010

Blessings!

We have had an amazing week this week, although you may think us a bit crazy when I fill in the details! :) Drew went to work on Monday morning, and in case you haven't heard, he came home an hour later. His employer has decided that he no longer needs Drew's position, so that was it; no warning, no notice, no job.

Of course, the lack of income is a bit disturbing, but other than that, we are choosing to see the blessings in the timing of Drew's lay-off. Drew has been home to watch the boys during some of Rebekah's appointment, and we have been able to keep Rebekah at home more while I have to take care of other chores and errands. This is especially important since we are doing everything we can to keep Rebekah from getting another cold or illness right before surgery!

Yep, I'm cute!

Drew has some job possibilities that he is looking into, so we would appreciate your prayers for the right job and the right timing. It will be a huge relief to both Drew and I that he will not have to be torn between Rebekah and his job next week while we are in Charleston. We know that God has a plan for everything, and we are trusting in His plan. In the meantime, the kids are very much enjoying seeing their Daddy more!

Zac and Rebekah at the park.

A couple of weeks ago, we met some new friends from Zac and Justin's school at the park. The kids had a great time playing together, and I enjoyed visiting with a new friend! The weather was super nice, and it was fun to watch Rebekah interact with her brothers and their friends.

Picnic in the living room!

For a few years now, we have enjoyed "family nights" with the boys on Friday nights. Usually we will play games or watch a movie together. On rare occasions, we fix "munchie" plates of fruits, veggies, crackers, cheese, and whatever else sounds good, and the kids are allowed to eat in the living room while we watch a movie. This was Rebekah's first experience with movie night, and she had fun. She was sampling red grapes, cucumbers and bananas, all diced in small pieces. We have been working on self-feeding with a fork and spoon in occupational therapy, and Rebekah would stab a piece of fruit or veggie (or I would help her get a piece on her fork), and then she would lift her fork to her mouth, take the fruit off with her other hand, and then eat from her hand. It was so cute and so funny!


Yogurt and cheerios....mmm, good!

Rebekah has been working really hard in her stander and walker, and we can see the results! She is much more confident in standing, and occasionally pulling herself up on a piece of furniture. Rebekah still cannot stand without the support of something, but she is much, much stronger than she was a few months ago. In pool therapy last week, Rebekah took three steps from the therapist to me, without holding on to us. It was the first time we have seen her walk without support! We know that Rebekah will not be walking by the time she has surgery next week, but she has gained so much confidence in the last few weeks that we are hoping she will bounce back to standing, and hopefully walking, soon after surgery.

See, I can stand up!

We have been told that Rebekah's stroller will be delivered this week for us to pick up on Wednesday at therapy. I am so hoping that it comes before surgery! MUSC is a very large medical campus, and it would be a huge help to have a stroller that can have on-board oxygen, rather than us having to lug a tank behind the stroller. We are certainly praying that it comes this week! It will also be much more comfortable for Rebekah to get in and out of after surgery.

Yes, I made this mess. I'm a little stinker some days! :)

If you read our last post in which we included specific prayer requests for Rebekah's upcoming surgery, you will understand what an answer to prayer we have seen this week. On Wednesday and again on Sunday, we received an anonymous note with some money tucked inside to help with our gas expenses. Thank you, Anonymous! We appreciate your prayers and encouragement! Also this week, we received a package with gift cards for several restaurants that will take care of our meals for quite a few days. Thank you!! That was a huge blessing! Then on Sunday, we received a very sweet note from some of our friends and they included another gift card and some money to help with expenses. You know who you are, and we thank you very much!! We love you guys as well!! The biggest surprise came on Sunday afternoon by way of a phone call from someone whom we had never met face-to-face. She asked if she could come by to meet us, and we enjoyed visiting for a while. She handed me an envelope when she left, and it contained money that will cover a good deal of our expenses. Thank you so very much!! The Lord has been providing this week in ways that we never would have dreamed possible, and we have been very humbled by it. The love and prayers that we have received is just amazing.

Not even my brothers could get me to smile!

This was the best smile we could get...after dozens of attempts. :)

There is a story behind this little gray outfit. When I was pregnant with Zachary, about this time nine years ago, Drew's mom and I saw this little outfit on clearance at the mall. We didn't yet know if Zachary was a boy or girl, but for some reason, we were all thinking "girl." The outfit was so cute, and Drew's mom decided to get it thinking that we would have a girl at some point who could wear it. Fast forward four boys later, and we finally have our little girl. I had completely forgotten about the outfit, but I'm glad Grammy remembered! It is so cute!

Rebekah loves playing with her tongue!

Front: Justin, Rebekah, and Aaron
Back: Zachary and Caleb

After many attempts over the last few months, this is the best picture we have ever gotten of all of the kids together. Our boys just adore their baby sister, and I know they are going to miss her while we are in Charleston. Please continue to keep us all in your prayers over the next few weeks.

Nancy




Sunday, October 17, 2010

Prayer Requests for Surgery

As Rebekah's surgery date approaches, we have been asked numerous times for ideas of how others can help. By far, the most important thing we ask of you all is that you pray for us. We have listed several specific ways that you can pray for Rebekah and our family below.

First, we praise the Lord for meeting our needs for housing and transportation while we are in Charleston. If you have never heard of CrossBridge ministries, please take a minute to look at their website. They have an amazing ministry, and I know they would also ask for your prayers as they continue meeting the needs of patients and families.

Pray that Rebekah stays healthy so her surgery will not be postponed. These next two weeks are critical for her, and she is currently recovering from a cold. Please pray for her quick recovery and for no more illnesses. Also, please be understanding when you may or may not see us out and about as we are trying to keep ourselves well so that we can care for Rebekah.

Pray that the surgery will go smoothly, that it will be successful, and that there will be no complications. Included in that, please pray earnestly for the surgical team, led by Dr. Scott Bradley, and all of the PCICU doctors and nurses who will be involved in Rebekah's care. I know we have said it before, but this is a major surgery. It will not be a walk in the park for any of us.

Pray that Rebekah will recover well with no post-operative infections or complications. We know from past experience that anesthesia and paralytic drugs are not very nice to Rebekah. She has a difficult time waking up after sedation. Pray that her recovery time will be as easy as possible for her.

Pray for the Lord's provision for our financial needs for surgery and the weeks of recovery afterwards. While we do have our transportation and housing needs met, there are other things like gas, meals/groceries and parking fees that will be needed. We have been blessed already with many offers of help in these areas!

Pray for safety as we travel between Greenville and Charleston. It is about a four hour trip one-way, and that is not an easy trip for a 15-month-old. Especially one who is recovering from major open heart surgery!

Pray for the boys as life at home will not be normal with Mom and Rebekah away. The boys all know (in age-appropriate terms) that Rebekah and Mommy will be going to Charleston for another surgery. While they do not know the seriousness of the surgery, they do know that they will miss their baby sister and mommy. Please give the boys extra hugs and be understanding if they seem to be more emotional than usual!

Pray for family and friends as they step in and help with the boys at home. We have been blessed by so many wonderful friends and family who help out at (literally!) a moment's notice. Thank you all so much for the many ways that you have helped out since we first found out about Rebekah's special heart. Thank you, also, to all of you who faithfully follow Rebekah's story via the blog. Many of you we have never met, but you have a special place in our lives. We could not do this without the support of so many people who are praying for us.

And, lastly, please pray for us. Having seen Rebekah go through one open heart surgery before, we fully know what to expect. And that is not a pretty sight. Please pray that we can be strong for Rebekah and that our testimony would be evident to all those around us. We meet many people while in the hospital with Rebekah. Please pray specifically that we would have an opportunity to share our faith with others through Rebekah's story.

Drew and Nancy

2 Weeks Until Surgery!

This is just a quick update to let you all know how Rebekah is doing. Rebekah and three of her brothers have been battling colds this past week, but thankfully, she seems to be doing better now. Please pray that Rebekah continues to improve and that she doesn't come down with any other illness between now and November.

Rebekah has been a busy little girl in the last two weeks! She has been doing very well in her therapies. Recently, Rebekah has started to pull up on low objects and very badly wants to be walking around with her brothers! We had hoped that Rebekah would be walking before her surgery, but it does not look likely that she will. We are thankful for the huge progress we have seen in her strength and endurance and being able to tolerate standing for long periods at a time. Rebekah is also starting to work on feeding herself with a spoon and fork. Sometimes the process is messy, but the end result is one very happy little girl! :)

Rebekah decided to make up for lost time in the dental department. She is now sporting ten little teeth in her mouth, six of which came in during the last week and a half! Nothing like doing things in half measures! :) Along with the new teeth comes the ability to eat a few new foods that require more than gums to chew!

Rebekah is such a joy and blessing in our lives. We are enjoying our time together and making the most of every moment as we approach surgery. Thank you all for loving our little girl!

Drew and Nancy

Thursday, October 7, 2010

Baby Joshua

This has been a rough week in the heart community! Another sweet boy, 7-week-old Joshua, died in his mother's arms yesterday morning. Joshua had an older brother and sister who are understandably questioning why their baby brother is not going to be coming home. Please pray for Jill and Shane and their children at this time. You can read more about Joshua and his family by clicking here.

Monday, October 4, 2010

Ewan Eliezer

It is with much sadness that we extend our condolences to James and Kirsten in the loss of their precious son, Ewan. In the world of heart babies, each one is a part of the family, and the family hurts when one is lost.

Kirsten wrote this beautiful post about their last hours with Ewan. They have such a strong testimony and assurance that they will be with their baby boy again in heaven.

Our prayers are with you, James and Kirsten. We will always remember your precious Ewan.

Nancy

Saturday, October 2, 2010

Baby Ewan

I have just learned tonight that a little heart buddy is in very critical condition. Baby Ewan (pronounced you-un) is just two weeks old today, and has already undergone multiple invasive procedures as a result of a congenital heart defect called Tetralogy of Fallot. In Ewan's case, the tetralogy is so severe the doctors were unsure they would be able to attempt repairing his heart. Two days ago, Ewan was taken off ECMO (heart and lung bypass machine) and was doing well. After several hours, it was obvious that his heart was working too hard and he was put back on life support. As of today, Ewan's parents (and doctors) are facing the tough decision of whether to try another life-saving procedure or let him go. Please pray for the Peterson family tonight - for peace, comfort and wisdom. And if you'd like to see some adorable pictures of Ewan and read more of his story, you can find him by clicking here.

It is always heart-wrenching when parents watch their children suffer, whatever the reason. But I think we share an unbreakable bond with parents of heart babies, no matter their race, beliefs, location or background. It is only by God's grace that we have not had to face a similar situation with Rebekah, and I cannot say with certainty that we won't. But I know that whatever we face in the future, whether the coming surgery, or years later, that God will give us the peace, grace and strength we need to trust Him.

It is on days like today that I am reminded that the therapies, doctor's visits, oxygen, feeding tube and everything else that we have with Rebekah are really nothing in light of the decisions and pain that others are facing. Those whose children are no longer here, or whose children are clinging to life in a hospital would give anything to have their children home, no matter what little inconveniences come with that. I am reminded of how blessed we have been and continue to be.

My heart is very heavy for James and Kirsten tonight. Please, please, uphold them in prayer, and feel free to add them to your prayer list in church tomorrow.

Nancy