A year ago Rebekah went for her first sleep study and we discovered that she was having both obstructive and central apnea spells during her sleep. The number of occurrences per hour put her in the severe apnea range. Two weeks ago Rebekah had a follow up sleep study. Today we had an appointment to get the results of that sleep study.
I am so excited that the number of apnea events that Rebekah has during her sleep has dropped from the severe to moderate range!! For the last year Rebekah has been taking Clonidine to help her sleep through the night, and she has been sleeping with 2 liters of oxygen. She hasn't used the Clonidine in the last two weeks, and we were told today that she doesn't need to take it any more at all! Dr. G also decreased her oxygen requirement while sleeping from 2 liters to 1/2 liter when sleeping. We are very pleased with how well she's doing!
She's so cute!!
Since Christmas Rebekah has been sleeping more and overall more fatigued than she had been. She also has been more clumsy - walking into walls and doors, falling out of chairs, tripping and falling for no obvious reason. So we've been trying to figure out what is going on. The bottom line is that we haven't found an easy answer. Rebekah had an echo and cardiology check up that looked absolutely perfect. A panel of bloodwork also came back looking perfect - not even borderline readings, but absolutely 100% perfect! We were really hoping that the sleep study would turn up an answer for the fatigue, but it didn't. So we are now waiting for Rebekah's cardiologist to call us with a new plan.
Peek-a-boo!
~ Nancy
