Sunday Morning

Good morning to all! Rebekah had a very stable night, but made no improvements. She had done so well peeing off fluid for a couple of hours last night, but overnight slowed down considerably. The doctors have started a Bumex drip (constant IV drip) in addition to the Bumex and Diurel meds she was getting every six hours. The doctors don't want to make a lot of adjustments or try anything new to get Rebekah's pressures down until the fluid is resolved. So, right now we need lots and lots of fluid output!

In other news, the pressures that we thought had dropped some yesterday afternoon have not really dropped at all. Late last night (much later than my last post), Rebekah's nurse and I realized that the pressure probe inside Rebekah's conduit was not reading accurately. So, after flushing the line, we got a very accurate reading. Rebekah's PA pressure is almost equal to, and sometimes higher than, her systemic pressure. This is not the trend that the doctors wanted to see! They had really hoped to see those numbers growing farther apart. But, again, they are not ready to make a move toward intervention at this point until a lot of that fluid is resolved and we can see how her heart reacts under less stress.

We are at the hospital now, but have not been able to see Rebekah because the doctors are doing a procedure. Whether or not it is on Rebekah or another child we have no idea, but it will be a little longer before we are able to see Rebekah this morning.

Hope you all have a great Sunday!

Nancy