Believe it or not, Rebekah is now 4 for 4 in the feeding tube department! Yesterday evening she pulled her feeding tube out again, so here is the daily picture with no tubes! :) I don't feel so bad this time - Rebekah's nurse actually had her hands on Rebekah and wasn't fast enough to stop her from pulling the tube out. At least it's not just me! :)
Our sweet little girl!
Rebekah is still scheduled for her swallow test tomorrow. She will be the first case, but we still have not heard what time that first case will be. Last night was a bit harder as Rebekah struggled with her reflux with almost every feed. At one point, her nurse had to come in and suction her because she was choking. The doctors are still not willing to commit for sure, but in our opinion, it looks like Rebekah will be coming home with a feeding tube. We'll wait to see what they say tomorrow!
Drew got here just in time to help with Rebekah's bath this morning! Rebekah had a busy morning with doctors, daddy coming, vital signs, a weight check and a bath!! Rebekah weighed 6 lbs. and half an ounce this morning. We are never quite positive about the weight since she still has some leads and monitors attached, but the good news is that at the very least she is remaining stable and not losing weight!
The doctors hope for Rebekah to have a good day today and spend time sleeping and growing. There has been talk of trying to compress her feeds to 45 minutes, but we are cautiously waiting to see if that happens or not. She seems to still be struggling with feeds over an hour; I can't imagine what she will do when she gets it in 45 minutes!
That's about all for now! We're off to find some lunch! :)
Nancy
1 comment:
Hello. I keep checking back to see if you have any news on Rebekah's swallowing study.
Hugs,
Denise
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