Continued prayer for our little lady

Rebekah has had a busy week so far. We met with the cardiologist here at home yesterday. Lots of info and I am sure my wife will post more when she has time. But the biggest concern at the moment is that Rebekah is having trouble with her feeds. She is so tired out that she has been sleeping 6 hours at night. While normally this is a good thing, for her it means she is missing a feed. She has very low endurance right now and just the short time during her echo yesterday exhausted her. We are going for a weight check tomorrow, and if we don't have some forward progress, they are going to get aggressive with her feeds. The first step will be to fortify her milk with even more calories than it is fortified with right now. After that, the doctors would try to hospitalize her in Greenville and feed her through an NG tube like she had in Charleston. They would try that for a week to see if she can gain a little weight without expending the calories to eat. Sometimes babies need just a little extra growth to get over the hump and begin to eat well on their own. If those two options still don't produce the growth that the doctors want to see, we have been told that Rebekah will probably have to go back to Charleston for a G-tube. We knew this might be a possibility, but were hoping it would not be necessary.

As far as Rebekah's heart, it is doing great. She is retaining very little fluid and her heart function is very good. Her lungs are also doing well right now.

We hope as you think of us and Rebekah that you would continue to pray for us. While we have gotten through the scary part and returned home for now, there are still many miles to go down the road. We ask you to continue to pray for Rebekah's growth, and our adjustment to a new kind of "normal" for our family. The boys are doing great and have been wonderfully helpful, but it is still a lot of adjusting for all of us to make the family run again. Also continue to pray for the Lord's gracious provision for all our needs financially and emotionally.

We have to give all the praise to the Lord. He has lifted us up and walked us through all of this adjustment and adventure. Through all of this He has given Nancy and I the most precious gifts, our children.

Once again thank you to all the family and friends who have prayed and given to help us.

D