MRI tests and Post-MRI Update

Bekah came thru her MRI ok today. She came home with a slight fever and generally not feeling well. After I got home late this afternoon she had taken a down turn with a high heart rate and fever. So Mom, Grammy, and Bekah are headed to the ER. I will try and post updates as I get them. Please pray for our little one she has had a long day already.


-D

Bekah enjoying spending the week at Grammy's and Grampy's. She is learning to love the pool.

Forward, then back

This morning Rebekah was looking great, and I was really excited about the possibility of going home tomorrow, but now....not so much.

Rebekah is back on oxygen at 1/2 liter. It's not much at all, but her sats dipped to 68 this afternoon without warning and hovered in the low 70's for long enough that the respiratory therapist (RT) felt we needed her back on a bit of oxygen. Since then, she's been maintaining sats around 90. I asked the RT to listen to Rebekah's lungs, and she did hear some congestion, but no wheezing. That's good! I'm just hoping we're not heading down the same road we were on three weeks ago.

We are still not using the g-tube, nor will we be using it tonight. After discussing it with the doctor, he felt it would be better to run her feeds during the day tomorrow while more doctors and staff are on duty so that they can respond quickly if there is a problem. For now we are continuing to feed by mouth as Rebekah wants it, although she is still not eating as much as she was before we were admitted.

The doctors have ordered an amazing amount of labwork for Rebekah - things with more letters than I can count! She had blood drawn for several test and we are trying to collect stool samples to check for allergies, infections, bacteria and a lot of other things that I don't remember. Then we will be waiting to see what the results of those cultures are.

Based on all of that information, the doctor isn't even thinking of discharging Rebekah before Friday, and possibly not then. It will all depend on how well she does tomorrow during her tube feeding and on the results of her labwork. Until then, we get to hang out together and enjoy some snuggles!

Drew and I would like to say a huge thank you to everyone who has been helping out with the boys and with meals, both during this hospital visit and the last one. We are so blessed to have close friends and family to help, and it really takes some of the pressure off of us! That being said, please keep our boys in mind as you pray for Rebekah. Understandably, they are upset that their sister is back in the hospital and that Mommy is not at home. Grampy and Grammy arrived this afternoon, so at least the boys will be at home and back to more of their normal routine.

Much love,

Nancy

Baby Shower

Due to Mommy not feeling well today, Rebekah and I will try to post this and Mommy can edit or add to it later.  

Mommy and I had a nice surprise yesterday.  I am amazed at how sneaky Daddy and several of Mommy's friends are.  They managed to pull off a surprise shower for Mommy and Me.  After 3 months of planning and wondering if it all could be done, we did it.  

Mommy had Grammy, Aunt Aimee, and Cousin Peyton come to take Mommy to lunch and shopping, but what Mommy didn't know was that they were taking her to my shower.  Mommy was very shocked and enjoyed it very much.  I want to thank everyone that helped plan and who attended for a really nice luncheon for Mommy and Me.  Mommy and Daddy want to thank everyone for all the nice gifts that everyone brought for me.  Also, we want to thank Ms. Peyton for all the clothes she passed to me that she is no longer using. 

Daddy and Mommy worked on hanging some things on my walls last night.  Daddy and I thought it best not to post any pictures yet.  Mommy wouldn't be too happy with us if you all saw my messy room.  When Mommy is feeling better and has time to sort it all out and put things away then Daddy and I will post some pictures.   

Love you all,

Rebekah Grace