I've been putting off a blog post in hopes that I would have surgery date to give you, but I've given up. I'm posting anyway, and maybe we will have a surgery date by October. Maybe. :)
I don't really know why it is taking so long this time for MUSC to schedule a date for Rebekah. We know that her case has been presented at conference (several weeks ago), and we know that the doctors have decided to proceed with the surgery. So why the wait? The best guess I can come up with is that she is just not a priority case right now. Yes, the surgery needs to happen, but from a medical standpoint, it really doesn't matter if it happens this week or three months from now. I guess we'll know the date when they call us, and no amount of fretting over it is going to make them call us any faster. :)
In other news, Rebekah is talking a mile a minute! :) She truly is our little parrot and will attempt to repeat almost anything she hears. It's quite comical to hear her repeat random words or phrases that her brothers have said. Her favorites seem to be singing Jesus Loves Me and Deep and Wide. She says "song" and touches my lips to let me know that she wants me to sing her songs with her.
Rebekah is playing with "hats."
Rebekah has had great sessions at physical therapy the last two weeks. This week she was stepping up and down from a little four-inch platform with almost no assistance at all! Rebekah's PT mentioned that if Rebekah does this well again at her next PT session that we will probably go back to an every-other-week schedule. That would make this Mommy very happy!! :)
Justin and Bekah are almost inseparable.
I am sitting here trying to think of other Rebekah "news" to share, and I'm honestly drawing a blank! After two years of medical crises, delayed development and more than her share of colds and sickness, Rebekah is just being a normal two-year-old! We are certainly enjoying this period of "normal" right now and will continue to enjoy it for as long as it lasts. :) We are so thankful that the Lord has blessed Rebekah with several months of good health. She is still sleeping a lot more than a "normal" two year old, but that is going to continue at least until surgery and may always be a problem that Rebekah struggles with.
Lookout, Brothers! There's a new sheriff in town!
This will be Rebekah's first RSV season without the RSV vaccine. The vaccines are only given until the age of two, since RSV is usually worse for young children. However, we are concerned since Rebekah's anatomy is very different from that of other two-year-olds. I'm not sure what will happen if Rebekah gets RSV. Most certainly it would be a hospital admission. I'm afraid it would be a struggle for her to keep her oxygen saturation up in her normal range. Please pray with us that Rebekah does not come down with RSV this season!
In case you missed the previous post, you are all invited to join us for the Ride for Mike Family Ride on Saturday, October 22. The ride starts at 8:00 at Cleveland Park in downtown Greenville and ends with a picnic lunch at 11:00 at Gateway Park in Traveler's Rest. There is no charge for the picnic or the ride, but we do need a count of how many will be attending. If you would like to come, please feel free to email Jonathan or leave a comment below with the number in your party. Also, Jonathan has set up a tax-deductible fund for those who are interested in giving to Ride for Mike 2011. All proceeds will be disbursed through Helping Hands Ministries and will be used for expenses directly related to Rebekah's care, especially with her upcoming surgery. You can find instructions for giving to Rebekah's project by clicking the Ride for Mike link on the top left sidebar of the blog, or go directly to the Ride for Mike 2011 donation page.
Thank you all for your support and prayers.
Nancy
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