Rebekah had her nine-month well visit on Thursday, and it was a relatively quick one! There were no major problems or issues to discuss, which is just fine with me. The only thing we really had to talk about was scheduling both a hearing and vision evaluation sometime in the next couple of months. DiGeorge Syndrome can cause problems with both vision and hearing, so we are making sure that if there are any problems we can correct them quickly.
This week should also be a fairly quiet week. On Tuesday, Rebekah will see the pediatric surgeon here in Greenville to have her g-tube changed to a little larger one. It should be a five-minute procedure done in the office. The reason for the change is that Rebekah has grown some from when she had the last g-tube inserted in January, and this one is just snug enough that it is rubbing and causing some irritation around the g-tube. It should be a little more comfortable for Rebekah once we get it changed.
On Wednesday, Rebekah will meet with a new speech therapist for an evaluation. If you remember, Rebekah was receiving speech therapy at home in the fall, but we discontinued the therapy because the therapist we had was not trained to work with infants. I felt like the therapy sessions were wasting our time and the therapist's time as well. Our Early Interventionist has not been able to find any speech therapist trained to work with Rebekah who will come to the house, so we will go to them! During Wednesday's evaluation the therapist will mainly be watching Rebekah's mouth and tongue as she eats and drinks. That is a good indicator of how her oral motor skills are developing in relation to her age and other developmental skills. We already know from Rebekah's OT (Hi, Beth!) that Rebekah is not moving her tongue from side to side like she needs to be in order to move food around in her mouth to chew it. Right now, anything that goes into Rebekah's mouth gets pushed straight to the back of her mouth, and she either swallows it (pureed foods) or chokes on it (anything solid). We'll see what the speech therapists have to say on Wednesday!
That about wraps up this update. Hope you all have a great week!
Nancy
2 comments:
I'm glad your staying out of the hospital and getting some quality time before her next surgery. We were just told by Jax genetics doc that he has Digeorge anomolies. A lot of characteristics of Digeorge syndrome but he doesn't actually have it. Strange!
We just got another email from Teresa about Rebekah Grace. We do rejoice with your family at God's goodness to each of you, especially that precious little girl. We here in Mebane continue to pray for her, and it is a joy to see how our faithful Father is answering our prayers. We trust Him too to give you much grace and help in these days. Please give your sweet daughter a hug from us. Love to you all. Susan
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