I saw this story on the 1in100 Facebook page, and what a story it is!! This is the exact surgery that Rebekah had, only she was not given the option of the remote control band. I can see where this would be a huge benefit! If we had this type of band, theoretically the surgeons could enlarge the band right now and postpone Rebekah's surgery a bit longer to give her collateral arteries a bit more time to grow. If you have a chance, read the story and also check out the 1in100 website. It is specifically dedicated to spreading awareness of CHD (congenital heart defects). The two primary goals of 1in100 right now are 1) advocating for pulse oximetry for each newborn, which can detect some types of CHD's, and 2) pushing for the manufacturing of pediatric heart devices, including valves and parts used to create arteries such as the one Rebekah will be getting. This is a great organization to support for their work!!
Nancy
