I know I should be in bed, but I really wanted to post a quick update to ask for prayer for three special babies at MUSC who are fighting hard tonight.
Bobby had a band placed on one of his pulmonary arteries last week Monday (this is the first surgery that Rebekah had done when she was a week old). He had a great week, but has been struggling this weekend. Today the doctors think that he has pneumonia and that his lungs are collapsing. The situation is not good, and he is in critical condition. Family is headed down to MUSC to be with Bobby and his parents. I know they would desperately covet your prayers.
Jackson is the little boy whose parents we met the night Rebekah was supposed to be transferred to the step-down floor, but they didn't have a bed for her. He was doing so well right after we left the PCICU, but took a bad turn shortly after that. Just last week he had his FOURTH open heart surgery (since the week before Christmas). Please pray for Jackson and his family. They are weary and fearful for their son.
Martin is a beautiful baby born less than two weeks ago with HLHS. He had his first stage surgery on Tuesday last week, and has been struggling to keep his oxygen levels in a good range. His heart defect is vastly different from Rebekah's, but like Rebekah was before her second surgery, there is a "target" range for acceptable oxygen levels. Too low and things are bad; too high and it causes other problems. I know his parents would appreciate prayers for Martin, that the doctors could find a reason for his low oxygen and be able to get him to a safer level.
On a happy note, (not-so-little-anymore!!) baby Jude is doing very well! He was upgraded to a bed by the window so he can start to get a feel for days and nights. He has some pulmonary hypertension issues (like Rebekah), and the doctors are working with some medications to try to get that under control. He was on pain medications for quite a while longer than Rebekah ever was, and he is struggling to wean off those meds. They tried a new medication this week to help "bridge" the gap off his old meds this week, and it seems to be working better. His parents have also requested that we pray for him to regain his sucking reflex; right now he doesn't want anything to do with something in or near his mouth (not that I blame him, but it is kind of important that he get the hang of sucking a pacifier and/or bottle).
All four of these little guys (And, yes, they are all boys! Rebekah is outnumbered!!) are from the Greenville area, and we have connections to each of the families. Some we are very close friends of the family; others are a friend-of-a-friend situation. Regardless of how we came to know about each of these families, they are each close to our hearts, and tonight our hearts are heavy for our friends and the struggles they are facing with their little ones. Please join us in prayer for each of these families. Oh, and Rebekah has an early appointment with the sleep doctor for the results of her sleep study. Please pray for wisdom and that we will know where to proceed with the results.
As always, we thank you for praying!
Nancy
Monday, February 13, 2012
Subscribe to:
Post Comments (Atom)



No comments:
Post a Comment