Two weeks is....
a long time yet
such a short time
to get ready to
place my baby
in the hands of
an incredibly skilled surgeon
his "A Team"
and most importantly
the Hands of God.
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Click the picture to help with expenses related to Rebekah's surgeries and care. Choose "Medical Projects" then select "Ellis, Rebekah Grace"
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My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. 2 Corinthians 12:9
REBEKAH GRACE ELLIS FUND
Click the picture to help with expenses related to Rebekah's surgeries and care. Choose "Medical Projects" then select "Ellis, Rebekah Grace"
We're counting on you to pray for Rebekah!
Rebekah's Address
Rebekah G Ellis
5 Mill Valley Court
Taylors, SC 29687
MUSC Roommates & Buddies
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Rebekah Grace
My name is Rebekah Grace, and I was diagnosed with DiGeorge Syndrome shortly after I was born on June 29, 2009. As a result of this genetic disorder, I have Truncus Arteriosus, which is a complex congenital heart defect (CHD). I had my first open heart surgery on July 7, 2009, and I had my complete repair on November 5, 2010. My surgeon was unable to create a right pulmonary artery, so I only have one working lung. Because of this, my heart repair created high pressures in my heart, and I am on several medications and oxygen to help reduce the pressures. I am currently waiting for the doctors to come to a decision about what the next best step is in my care plan.
My Daddy and Mommy named me Rebekah Grace, which means Bound by Grace. God's grace has been very evident in my life, even before I was born. There are lots of people praying for me, so please come back often to see how God uses my life!
If you would like to contact my Daddy and/or Mommy, please click here. They would love to talk to you!
The Medical Highlights
- Heart Catheterization at MUSC April 15, 2015; discharged same day!
- Heart Catheterization at MUSC May 16, 2013; discharged same day!
- Initial sleep study to diagnose multiple sleep issues - January 30, 2012
- After only NINE days, Rebekah is discharged on December 20, 2011
- Open Heart Surgery Revision of Truncus and Unifocalization of Collateral Artery - December 12, 2011
- Heart Catheterization at MUSC August 16; discharged the same day!
- Hospitalized at GHS for respiratory illness and severe ear infection - March 31 - April 3, 2011
- Heart Catheterization at MUSC March 7, 2011; discharged March 8, 2011
- Hospitalized at GHS for respiratory illness - Dec. 11 - Dec. 14, 2010
- After two weeks of recovery and unexplained fevers, Rebekah leaves MUSC - November 18, 2010
- Open Heart Surgery to repair Rebekah's Truncus Arteriosus - November 5, 2010
- CT Angiogram to check for growth of collaterals - March 26, 2010
- ER visit found fistula at catheterization site March 11, 2010
- Heart Catheterization March 9
- Hospitalized at GMH for respiratory illness and chronic GI issues - Feb. 10 - Feb. 24, 2010
- Surgical reinsertion of g-tube Jan. 21, 2010
- Hospitalized at GMH for g-tube malfunction and respiratory illness Jan. 11 - Jan. 31, 2010
- Hospitalized at GMH for respiratory illness - Dec. 17 - Dec. 24, 2009
- Replacing Bekah's G-tube button with a Mic-key button- Nov. 18th
- Rebekah's G-tube and Nissen procedure scheduled for September 28
- Rebekah leaves MUSC to go home for the first time - July 22, 2009
- Banding of Rebekah's left pulmonary artery - July 7, 2009
- Rebekah arrived June 29th @ 1:40pm
For I have created you for my glory, I have formed you; yes, I have made you. Isaiah 43:7b
4 comments:
Yes, most importantly the Great Physician! You are in our prayers, each one of you.
We will be praying!
Praying so very hard for you all. I have been reading for a good year but wanted to let you know that I am here praying. I came across your blog and Rebekah reminds me so much of my little girl. When Clara sees Rebekah she says "me". It may just be the nasal canula...my daughter has one too (NEHI interstitial lung disease). I love the picture you have on this post...she is so very beautiful.
Denise WI
that comment is so meaningful - the waiting time is over - all is now in God's Hand - there is NO SAfer Place to be than in God's Hands- We love you very much - you will be in our prayers over the next few weeks - Jesus Loves you - Aunt Laneva
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